Will You Help Spread the Word?

Today is the annual Spread the Word to End the Word Awareness Day. This is a movement seeking to end the use of the r-word: retarded. This word is offensive to people with intellectual or developmental disabilities. And it’s a word that is used all. the. time. I will admit it: I used to say … Continue reading

It’s Been a Long Time, Baby

Look at my little boy! He’s gotten so big. It’s insane, really. I haven’t updated this blog in a while, but I’ve been meaning to start blogging here again and so, here I am! Wyatt’s almost nine months old now. He’s not sitting on his own yet, but he’s getting pretty good at propped sitting. … Continue reading

Prenatal Testing is NOT Toxic

I get so sick of people talking about advances in prenatal testing as if it alone is responsible for the massive numbers of babies with Down syndrome aborted. 90% of babies diagnosed prenatally with Down syndrome are aborted. This is a horrible statistic, and believe me, I want to change it more than anything. But … Continue reading

From Optimism to Realism

Once I finally came to accept the diagnosis of Down syndrome while I was pregnant, I was determined to make the best of it. I did all my researching, I talked to people, and everything I read seemed so positive. We’d come so far with our medical advances, therapy enabled our kids to do more … Continue reading

I Seem to Have Misplaced My Brain…

Yesterday, I was playing Scrabble on my phone. I was checking on the games I had saved, and saw that the other player had entered the word “size”. I looked at it and thought, “What the hell? That’s not a word.” And then two seconds later I realized why yes, Cassy, that is a word, … Continue reading

When Do I Get My Angel Baby?

When I found out Wyatt had Down syndrome, people kept telling me over and over again how easy hew as going to be. Babies with Down syndrome slept all the time! They slept through the night early! They never cried! They were SO easy! Yeah, right, I would think. That’s too good to be true. … Continue reading

The Day The World Changed

My life will forever be defined by “before” and “after”. Before 9/11, I look back and feel… naive. Stupid. Indifferent. How could we not have seen the signs? How could we not have known? Almost 30 years, Muslim terrorists had been attacking us. But we went on about our lives in blissful ignorance, with no … Continue reading

“He Makes Me A Better Person”

That’s what my husband said to me today. We were talking about our days, and he was explaining that someone had make a crack against kids who compete in the Special Olympics. Everyone had laughed, he said… every single last person there, except for him. That part didn’t surprise me, but it made me sad. … Continue reading

Such A Big Guy!

It seems hard to believe that my little man is three months old. Three months old. That is just insanity! Just like with Ben, time has flown by. It feels like just yesterday I was waiting in the hospital to have him. He had a three-month check-up yesterday, where we found out that he weighs … Continue reading